cindylouwho: (smile)
New new new new neuro is made of win.  She read over my chart, asked me questions and had a diagnosis within 15 minutes.  She has concluded that I have <a href="http://ihs-classification.org/en/02_klassifikation/02_teil1/04.08.00_other.html">new daily persistent headache.</a>

I have been prescribed Indomethacin and will be going back for nerve blocks and biofeedback.  She is also contacting my primary to make sure I can get tapering dosages of T3 since she doesn't prescribe narcotics.  

I finally feel like someone is listening to me, and she even agreed it could have been a result of the Optifast.  FINALLY REDEMPTION!!!!!

So I feel good about this and if the nerve blocks don't work they will petition to get me botox.

And she signed off on the surgery.  WOOT!  :)

Thank you all for your positive vibes and help and everything.
cindylouwho: (tennant2)
earlier I was tired when I made this post:

I hope this clarifies it, but I am kinda stoned now so IDK if it is clear.

The neuro [he is the 3rd one I have seen] has referred me off to a 4th one.  Seriously.  And he gave me the worlds smallest prescription, so I am NOT HAPPY.

Then I had the regular dr.  Well I would have, but she was home sick, so I saw some other dr.  He at least took my word about the sinus infection and gave me antibiotics and refilled the 2 medications I needed refilling and sent me to get a blood test to see if my vitamin d level was low again.  [it was so low 6 months ago, it was barely registering]



So: basically the old neuro is not equipt for my issues now that its apparent it is a daily chronic thing.  So they need to send me to someone who can deal with that.  SO I am seeing a pain management specialist and a neuro all in one.  They are working on the referral right now for me.  He says it is common to have people go back and forth to neuro's.  He wanted to send me back to neuro of fail but he left the state.  I would have NEVER allowed it.  No way in fucking hell.

I saw a PCP, not mine, and I was bummed b/c I love my dr.  She is sweet and great but she had been taking care of her sick kids and got the tummy bug herself.  SO I was able to get antibiotics for the sinus infection, a refill on the ativan, and an adjustment of my antidepressants.  I hope that will boost my mood.  They also re-tested me for Vitamin D deficiency which I bet is low again.  I hope that the upping of the antidepressants helps me and gives me back my motication and energy, especially if they find I have the D deficiency again.  That will fix me right up again.

I'm really sleepy and stoned and oops fell over

UTTER FAIL

Feb. 2nd, 2010 12:56 pm
cindylouwho: (barrowman!)
The doctor visits were utter FAIL.  FML. 

The neuro [he is the 3rd one I have seen] has referred me off to a 4th one.  Seriously.  And he gave me the worlds smallest prescription, so I am NOT HAPPY.

Then I had the regular dr.  Well I would have, but she was home sick, so I saw some other dr.  He at least took my word about the sinus infection and gave me antibiotics and refilled the 2 medications I needed refilling and sent me to get a blood test to see if my vitamin d level was low again.  [it was so low 6 months ago, it was barely registering]

I have to go to a meeting later for my part time job.  It is a waste of time.  I've been there so long I could RUN the meeting myself.  I do get paid for being there and fed, but I'd rather just get my materials and go home.  But I was sick for the last 2 meetings so I kind of have to go, that and I need the money.  And free dinner.

And when I got home I found Rascal had pooed on the floor.  

But I had turkey bacon and chocolate biscuits for lunch so that was good.  I also foresee a nap in my future.
cindylouwho: (wilson12)
OMFG my fucking head.  I can't take it any more.

3 t3s at 7:30pm.  It is 8:30 and I want to alternately scream and puke from the pain.  Fuck this shit.
cindylouwho: (Default)
* I hate when I dream about them.  I don't even care that they are together.  I stopped caring about that 12 years ago.  Just that he is there in my dreams and I can't talk to him.  I miss you B.

* When will this headache end?  Seriously enough is enough. 

* I've also had enough of the pollen, thank you very much. 

* Not much luck on the job search front.  Not many jobs to be had.  :(
cindylouwho: (Default)
Finally got new sneakers.  Took a nice run at the gym.  They are really sweet.  They are NB 1223's and are nice and cushiony.  My roommate works for NB so I get to use her discount which saves me money.  I also get free shoes on occasion since I am a sample size shoe and she brings free stuff for me.  (Last week I got Aravon leather ankle boots)  :)

Of course last night I whined about not writing and what I did I do before I went to bed.... write. LOL.  I don't know if I will finish it or post it so.....

My head has been killing for 3 weeks now non stop.  The Vicodin helps for a little bit but doesn't get rid of it.   Another month until new doctor.  I hope I can make it that long.  

I'm watching the MLL draft with my roommate and I should be asleep.  
cindylouwho: (Default)
I haven't been running in almost 2 weeks. Last week I had insomnia bad and I could hardly function never mind run. This weekend I was busy, had softball, and then Monday my stomach was upset. Yesterday my head hurt and today I said fuck it and went to the ER. I hate having to spend the money, but I needed to get SOMETHING. I was not going to make a month with no meds. So I have vicodin. Not many, but hopefully enough to get by. They told me to come back in 2 days if it isn't better. LOL. It hasn't been better in 3 YEARS!!!

I really hope that this new doctor has the answers. Or can get me to the people who can. Or gives me meds that don't suck.

No job prospects as of yet. Schools here are laying off teachers, not hiring. :(

I hope to go running tomorrow. One month until the 5k. I better get on it. I know times are tight but if anyone wants to sponsor me, it would be real, real great. I promise to do something wonderful for anyone on LJ who donates, be it a fic or something. <3

My report cards are due in a week. FML.


Otherwise, life is ok. I have friends coming in for a big gathering of Red Sox fans this weekend so it should be fun and crazy!

::sigh::

May. 18th, 2009 12:21 pm
cindylouwho: (housecane)
Being home sick from work sucks. And is boring.

There is nothing on tv.

I could read.

I *should* be working on my report cards.

I called my new dr's office to see if I could get my appt. moved up. No can do. It is going to be a long month with no pain meds. If worse comes to worse I can go to the ER again, but I owe so much money already I really do not want to go there.

Ugh

May. 17th, 2009 08:07 am
cindylouwho: (cameron)
My head and hip are KILLING and I have go to play softball. (This wouldn't be an issue if I had more than 3 pills left and I could take something, but NO)  IN THE RAIN.  DO NOT WANT.  I just want to get back into bed and stay there.  I can't believe the game hasn't been canceled.  I mean srsly who wants to play in the rain???  Not me.  Not to mention the park is like 30-40 minutes from here and I am going to be annoyed if I go all the way out there and find out they canceled it then.  Ugh.
cindylouwho: (Default)
So as you may or may not know on Thursday I had a spinal tap.  (which btw came back fine, all the fluid and pressure tests are perfect, juts like I said they would be)  And now I am on day 4, 5? idk anymore of bedrest.  I can't sit or stand without feeling like my head is going to explode.  Right now, my head is slightly elevated so I can type, and it is teh suck.

Anyways.... so yeah I've been to the ER twice.  I was going to have a blood patch to address this headache issue, but since the LP had to be done under xray there is no way they can do the blood patch unless they do it that way..... so I have pain meds and another 2 days excused from work if need be. 

I hope this goes away soon.  I cant even do simple things like making a cup of tea without it draining me.  
cindylouwho: (Default)
I know Cindy, STFU with your whine MOAR.  We know your head hurts.

Fuck it hurts. 

Head update

Dec. 7th, 2008 08:48 pm
cindylouwho: (Default)
I forgot to post an update to the saga that is my head. Friday I went back to the pain center and met with another doctor, since the one who will be handling my case, was not there last week. She was very nice and listened to the entire story and all of the things that have been tried and done and what works and what doesn't work (since the notes from my first visit weren't there yet). I explained that the new meds had chest pain as a side effect, and I didn't think that was something I should be taking IMO. She did agree. She also gave me a small script for T3s reminding me they do not remove the cause of the headaches. AS IF I DO NOT KNOW THAT AT THIS POINT. But they take away the pain so I can function. My next appt there is on the 19th and hopefully they will have a plan or something. I'm so tired of this. It's exhausting, not to mention expensive with all these dr. visits and prescriptions.

So hopefully I will make it to the 19th without needing all of these pills or more of them. It's been an ok weekend painwise, maybe as high as a 5 at some point, but not like last Wednesday when I wanted to drill into my skull with my drill.

Head update

Dec. 4th, 2008 07:03 pm
cindylouwho: (Default)
Today I went to the ophthalmologist. It was a fiasco. I was there for 3 hours and I had to have my eyes dilated. Then they did some tests which made me very anxious and then tried to do another and I basically said stop. I was freaking out and I had already taken 2 ativan and I was feeling like I was being pushed and pressured into this machine for my head. Not fun.

The results: There is no tumor on my optic nerve or anywhere my eyes are. Everything is fine.

This is all great, but it is just another thing checked off that is all right. I wish something would just be *wrong* so it can be fixed, so maybe they will believe me when I say I'm in pain.

I have another follow up with the pain center tomorrow. I've been calling all week and today I was like listen, I've been fucking waiting for a call back and no one has done so and I'm in pain and I want someone to listen to me. So the guy arranged for me to see another dr. there tomorrow. And they better give me pain meds b/c I am rapidly approaching the end of my secret secret secret stash.

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March 2011

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