cindylouwho: (Default)
I haven't been running in almost 2 weeks. Last week I had insomnia bad and I could hardly function never mind run. This weekend I was busy, had softball, and then Monday my stomach was upset. Yesterday my head hurt and today I said fuck it and went to the ER. I hate having to spend the money, but I needed to get SOMETHING. I was not going to make a month with no meds. So I have vicodin. Not many, but hopefully enough to get by. They told me to come back in 2 days if it isn't better. LOL. It hasn't been better in 3 YEARS!!!

I really hope that this new doctor has the answers. Or can get me to the people who can. Or gives me meds that don't suck.

No job prospects as of yet. Schools here are laying off teachers, not hiring. :(

I hope to go running tomorrow. One month until the 5k. I better get on it. I know times are tight but if anyone wants to sponsor me, it would be real, real great. I promise to do something wonderful for anyone on LJ who donates, be it a fic or something. <3

My report cards are due in a week. FML.

Otherwise, life is ok. I have friends coming in for a big gathering of Red Sox fans this weekend so it should be fun and crazy!
cindylouwho: (Default)
No cookies.  This week is easy since I am not at work so no cookies.  So if I don't give an update it's b/c I'm on vacation and I am going away tomorrow for 2 days so.... I do not anticipate any cookies in my future.  Just good times.  :) :) :)

Busy morning today: chiro, gym, psych med lady, gassing up the car.
Tonight, if the weather holds headed to Fenway, and then tomorrow morning heading north.
cindylouwho: (parade 2)
Had appt today.  Showed neuro that March had sucked; 4 days total I didn't have a headache.  He is now calling them "treatment resistant chronic headaches."  Lovely.

So changes are to follow:
1.  Wean off nortriptaline starting today.  50 mg per day for 1 week, then 50 every other day for 1 week.
2.  In 2 weeks start Cymbalta @ 30mg, going up to 60 if tolerated well.
3. Stop Topamax.
4.  All other meds stay the same.
5.  I also didn't get cut off, but I know he wasn't pleased.  Wants me to keep t3's to 15/month at max; which is a change from the 1 a week he wanted me at.  

Unforunately the pharmacy hasn't gotten the script via fax yet and I have to wait.  I hope I don't have to wait until tomorrow. :(
cindylouwho: (Default)
Well unfortunately the Topamax experiment is over. Actually it is rather fortunate since for the past week and some days I HAVE NOT BEEN ABLE TO DO A DAMN THING! I have not been able to think clearly. I don't remember most of this week actually. Most of it went by in a fog. I actually went to bed at 5:30 pm last night I was so tired and out of it. I was hopeful that it would work, b/c it was actually alleviating my headaches. (or I was so out of it I didn't know my head hurt) So Monday I will be calling the neuro and letting him know I'd rather be in pain without meds than live my life in a fog. I was observed at work on Tuesday and I don't even remember it at all now.

Seriously. Can't. Remember.
cindylouwho: (Default)
Today was my appt. with the neuro.  It actually wasn't as bad as I was thinking it was going to be.  I didn't get "lectured" so to speak and he gave me a T3 script without me having to beg ask.  (perhaps being paged "in the middle of the night" [at 7pm] didn't make him happy.)  He did note that I had gone through like 30 this month (hello I had 2 failed spinal taps and 1 one that nearly killed me for heavens sake, you should be lucky I wasn't eating them like candy.

He confirmed my spinal tap was fine.

He seems to be getting on board that this is a chronic thing that isn't being treated by conventional means.   He even told me to stop stressing about it (well I can now that I have frigging pain killers srsly)

He did make some changes to see what happens.

AM Meds: 
B2 and Magnesium
100 mg Nortriptaline (moved from evening)

PM Meds:
B2 and Magnesium
Topomax (new addition)  [off label for weight loss w00t!]

We also discussed the possibility to weaning me off the nortrip. and changing to Cymbalta.  He wants to see how this change goes first.  He also gave me a script for Lidocaine patches and gave me a bunch of samples.  I guess  I can use them on my back too when it is killing.

So it went way better than I had expected.  I go back on my half bday to see how things go.

cindylouwho: (Default)
So as you may or may not know on Thursday I had a spinal tap.  (which btw came back fine, all the fluid and pressure tests are perfect, juts like I said they would be)  And now I am on day 4, 5? idk anymore of bedrest.  I can't sit or stand without feeling like my head is going to explode.  Right now, my head is slightly elevated so I can type, and it is teh suck.

Anyways.... so yeah I've been to the ER twice.  I was going to have a blood patch to address this headache issue, but since the LP had to be done under xray there is no way they can do the blood patch unless they do it that way..... so I have pain meds and another 2 days excused from work if need be. 

I hope this goes away soon.  I cant even do simple things like making a cup of tea without it draining me.  

Head update

Dec. 7th, 2008 08:48 pm
cindylouwho: (Default)
I forgot to post an update to the saga that is my head. Friday I went back to the pain center and met with another doctor, since the one who will be handling my case, was not there last week. She was very nice and listened to the entire story and all of the things that have been tried and done and what works and what doesn't work (since the notes from my first visit weren't there yet). I explained that the new meds had chest pain as a side effect, and I didn't think that was something I should be taking IMO. She did agree. She also gave me a small script for T3s reminding me they do not remove the cause of the headaches. AS IF I DO NOT KNOW THAT AT THIS POINT. But they take away the pain so I can function. My next appt there is on the 19th and hopefully they will have a plan or something. I'm so tired of this. It's exhausting, not to mention expensive with all these dr. visits and prescriptions.

So hopefully I will make it to the 19th without needing all of these pills or more of them. It's been an ok weekend painwise, maybe as high as a 5 at some point, but not like last Wednesday when I wanted to drill into my skull with my drill.

Head update

Dec. 4th, 2008 07:03 pm
cindylouwho: (Default)
Today I went to the ophthalmologist. It was a fiasco. I was there for 3 hours and I had to have my eyes dilated. Then they did some tests which made me very anxious and then tried to do another and I basically said stop. I was freaking out and I had already taken 2 ativan and I was feeling like I was being pushed and pressured into this machine for my head. Not fun.

The results: There is no tumor on my optic nerve or anywhere my eyes are. Everything is fine.

This is all great, but it is just another thing checked off that is all right. I wish something would just be *wrong* so it can be fixed, so maybe they will believe me when I say I'm in pain.

I have another follow up with the pain center tomorrow. I've been calling all week and today I was like listen, I've been fucking waiting for a call back and no one has done so and I'm in pain and I want someone to listen to me. So the guy arranged for me to see another dr. there tomorrow. And they better give me pain meds b/c I am rapidly approaching the end of my secret secret secret stash.


cindylouwho: (Default)

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